CHDI Foundation

From Infogalactic: the planetary knowledge core
Jump to: navigation, search
CHDI Foundation, Inc
Logo of CHDI Foundation
Founded 2002[1]
Merger of Renewable Foundation, Inc.,
Sweetfeet Foundation, Inc.[2]
Type 501(c)(3) Non-operating private foundation[3]
73-1683871[2]
Focus Huntington's disease research and drug development
Location
Method Contract-based support of third-party research organizations[1]
Kenneth J. Slutsky[2]
Revenue (2014)
 $224,410,566[2]
Expenses (2014) $169,211,469[2]
Website chdifoundation.org
Formerly called
 High Q Foundation

The CHDI Foundation, Inc., is a United States-based non-profit biomedical foundation that aims to "rapidly discover and develop drugs that delay or slow the progression of Huntington's disease",[4] a neurodegenerative genetic disorder that affects muscle coordination and leads to cognitive decline.

History

CHDI's predecessor, the High Q Foundation, was established in 2002 by a group of private donors.[1] It was officially incorporated in New Jersey on October 17, 2003.[5] Originally, the High Q foundation aimed to identify targets for treatments, while CHDI - the 'Cure Huntington's Disease Initiative' - was a sister organization allied to the Hereditary Disease Foundation, that focused on developing drugs to hit those targets.[1] 'CHDI', which is officially no longer an abbreviation for anything, now refers to the foundation as a whole.[6]

In 2012 CHDI adopted a new logo, depicting a tree composed of interconnected circles. According to Simon Noble, CHDI's Director of Scientific Communication, the logo represents the groundedness of the Foundation, the hereditary nature of HD, the interconnectedness of biological pathways and the medicinal chemistry of drug development.[7]

Funding and direction of HD research

CHDI collaborates with a large number of academic and commercial research groups worldwide.[1][8] It operates through a "virtual" biotechnology model, funding third party research organizations as opposed to having a physical research infrastructure of its own.[9] Rather than supplying grants, CHDI enters into research contracts with its collaborators, and exerts a managerial role in addition to providing financial support.[1] In a 2007 Nature news feature, CHDI's then senior scientific advisor Allan Tobin stated, "Ninety-five per cent of science works on the principle that the best thing to do is to let good scientists follow their noses ... But this is a different attitude. We think we can direct the science."[1]

CHDI's annual spend is unknown, but it is the largest single funder of Huntington's disease research: according to a Nature news feature, it spent $60 million in 2006.[10] The identity of CHDI's donors is not public.[11]

References

  1. ↑ 1.0 1.1 1.2 1.3 1.4 1.5 1.6 Lua error in package.lua at line 80: module 'strict' not found.
  2. ↑ 2.0 2.1 2.2 2.3 2.4 "Form 990-PF: Return of Private Foundation". CHDI Foundation, Inc. Guidestar. October 31, 2014.
  3. ↑ Lua error in package.lua at line 80: module 'strict' not found.
  4. ↑ Lua error in package.lua at line 80: module 'strict' not found.
  5. ↑ "CHDI Foundation, Inc." Business Name Search. New Jersey Division of Revenue & Enterprise Services. Accessed on April 20, 2016.
  6. ↑ Lua error in package.lua at line 80: module 'strict' not found.
  7. ↑ Lua error in package.lua at line 80: module 'strict' not found.
  8. ↑ Lua error in package.lua at line 80: module 'strict' not found.
  9. ↑ Lua error in package.lua at line 80: module 'strict' not found.
  10. ↑ Lua error in package.lua at line 80: module 'strict' not found.
  11. ↑ Lua error in package.lua at line 80: module 'strict' not found.

External links

Retrieved from "https://infogalactic.com/w/index.php?title=CHDI_Foundation&oldid=718455120"